If you are going through alopecia right now, I really want you to know, that it’s not the end of the world to lose your hair – for many many reasons. Here are 3 very good ones:
1. Alopecia is cosmetic.
Alopecia is a unique autoimmune condition.
Consider other autoimmune diseases: Multiple sclerosis attacks your joints. Diabetes attacks your ___. Lupus attacks whatever the heck it wants.
Alopecia? It doesn’t affect your health. It doesn’t cause you pain. It’s purely cosmetic.
What does this really mean? It means its effect on you – painful or not – is purely psychological. The moment you change your mind about alopecia, its meaning changes. You can think that it’s terrible and that nothing sucks harder than losing your hair – and it’ll be true. You can think that there are loads of benefits to alopecia – such as how cool it looks, or that it helps you relate to people more, or that it makes you memorable – and all of the above will be true.
You thought alopecia was an autoimmune disease? Nah. It’s a mind game!
2. There are 140 million people with alopecia. You’re not alone.
More than 2% of the people on earth has alopecia! Most have alopecia areata. If you have 50 friends, chances are you know someone with alopecia! They may be trying hard to hide their bald spots without anyone knowing about it!
About one in a 1000 people has totalis or universalis, which is still a pretty high occurrence. Chances are you know someone with alopecia totalis or universalis, and probably don’t even realize it.
Some people have become so good with wigs that you’d never guess they are wearing them. I was one of those people. I remember attending an alopecia support group one time, and when I took my wig off everyone was surprised! Some said they thought I had alopecia before but my hair had grown back.
I highly encourage you to connect with other people with alopecia. For me, it’s had the most profound impact on me. Hearing their alopecia stories, seeing this bald person getting on with life – it’s eye opening.
So if you don’t know anyone with alopecia, how do you find them?
You can go on AlopeciaWorld.com. It was created a few years ago, when Facebook had just started to become ubiquitous. So, AlopeciaWorld.com actually looks almost identical to Facebook layout way back when!
There are over 18,000 members on AlopeciaWorld.com!You can connect with people, ask questions about alopecia, and join support groups.
You can also search for an alopecia support group near you. If you can’t find one, try contacting NAAF.org. They should be able to help.
Of course, it also helps to watch alopecia videos, such as the ones on Alopecia Channel 🙂
3. Alopecia is considered beautiful. It’s not ugly.
Did you know that many people think bald looks amazing?
We can be so harsh on our own appearance. I never thought I looked good without hair, but when I saw bald people in my support group, I thought they looked amazing! Slowly I was able to see it in myself too.
When I started going out without a wig, I got lots of compliments from strangers.
However, I do think it helps A LOT to rock it and own it. If you hold yourself a certain way, people will see you a certain way. Hold your head high, smile, shoulders back. I promise you’ll be getting compliments!
Here’s an extra bonus reason: Alopecia is flexible
You can choose to hide your alopecia, show it, or even have fun with it.
I have done all of the above.
I used to hide my alopecia. If you feel more comfortable wearing a wig, then do it. HOWEVER, my one recommendation is to try to be more relaxed about keeping it a secret.
Know that wearing a wig is not a big deal and not something you need to hide or be embarrassed about. Know that, letting people know about it will do you more good than harm.
When I tell people I have alopecia and it’s a wig I’m wearing, I get all sorts of good responses. Sometimes people open up to me about their insecurities. Sometimes people just say the wig looks great.
When you think about this being the consequence of people finding out about your baldness, you’ll be more chill about it.
These days, I wear a wig when I want to, and go bald when I want to. A wig to me is like a piece of clothing. I switch it up just as I do with my clothes.
I can go on and on about why having alopecia is not bad at all. I have been there – thinking that having alopecia sucked hard. I know what it was like to think it’s unimaginable that alopecia has anything good to offer.
I hope these 3 reasons help you feel better about having alopecia. If not, message me and let me know what’s on your mind 😉